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Carers Week 2021: Peter’s story

Peter’s story

Here, Peter shares some of his story about caring for his young adult son who has Profound Mental and Physical Disabilities.

Tell us about the person who you care for. How old are they? What sort of things do they need help/care with?

He is now 20 years old with profound mental and physical disabilities. He needs 24/7 care, 2:1 during the day with a sleeping shift over night

How much of your time each day/week do you spend caring for your family member?

Actually very little, but only because we have fought to get a Personal Health Budget (PHB) which has transformed the lives of the whole family. It is hard to manage and administer – but worth it.

Do you ever get a break from caring? If so, what sort of things do you like to do when you have a break?

As above, we now have time breaks. I am now a PhD student looking into PHBs

If you could have better support as a family carer, what sort of things would make life easier for you and your family?

PHBs are great, but there is no support for you run them. This support is what is needed.

How Imagineer can provide support to carers like Peter:

  • Imagineer can provide Information, Advice & Guidance to help carers like Peter to understand the Personal Budget or Personal Health Budget process; and understand their rights within that process
  • Imagineer can support with exploring options and providing assistance for developing a Personal Health Budget support plan to meet the person’s assessed needs
  • Imagineer can provide support to family carers and their family members during meetings with Health and Social Care professionals (such as Multi-disciplinary team [MDT] meetings)

At Imagineer, we work alongside unpaid family carers in many different ways; but one of the key ways that we can assist is by providing Support Brokerage.

If you are interested in receiving assistance from one of our Support Brokers, please contact us: info@imagineer.org.uk to request a call-back for an informal discussion, or a referral form.

For more information about Carers Week 2021, visit: Carersweek.org

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